Cooking was not my forte. Yet, there
were a lot of ingredients to this cake.
An enmeshed mother-daughter relationship
with my mother? Check.
A significant health crisis,
impacting my elderly mother? Check.
A significant health crisis,
impacting me? Check.
Universal truths of humanity I
cannot avoid? Check.
Mom was a “Baked Cake,” especially
within my caregiving experience of her.
In
2009, my mother had a stroke. Now, she resides in a care
facility. Mom can no longer walk without a walker, spending most of her time in
her wheelchair.
And since then, I have
been her health care agent. I have attended appointments, care conferences and
have made decisions as that advocate. She has often questioned and challenged
me, asserting I’m overreacting and being “silly” at my attempts to keep her
safe and healthy.
And like many
caregivers to their elderly parents, I have been stressed in a kind of no-win
situation way. It has been within this context, I have learned much about her,
myself, our dynamic and what I can and cannot control.
The Baked Cake: It’s
Not About You:
“For now we see through a glass,
darkly… now I know in part; but then shall I know even as also I am known...”
1 Corinthians 13:12-13
Information-intel- is the focus of
this first caregiving learning lab. There’s stuff that has absolutely everything
to do with the elderly person: their physical, emotional and mental needs,
for example, and nothing to do with you and me!
In the years since my mother’s
stroke, I have discovered some startling revelations. Some of this information
was purposely withheld from me; some of it was withheld because of sheer
ignorance.
But, regardless of the origins,
those revelations still created “a-ha” moments.
Without getting into the personal
specifics, much of what I learned “after the fact” about Mom centered around her
fear and shame-based choices. And that has nothing to do with me.
And, because she is now at this
stage of life, meaning, being physically affected by her age, her stroke and her
corresponding health issues, her “baked cake” condition concludes that expecting
change, insight or some personal overhaul from her is, therefore, unrealistic.
Many of us caregivers can often
find ourselves in this painful reality. Ships have sailed, opportunities have
passed by. Now what?
The Baked Cake: It IS
About You:
“Ponder the path of thy feet and let
all thy ways be established.”
Proverbs 4:26
Congratulations, we have arrived at
the next phase of “Baked Cake” caregiving: our own personal reflection. How do
these caregiving challenges- and, more importantly, how does this
vulnerable person we care for- affect us?
It’s not a self-indulgent concept
to dismiss.
Beyond sentimentality, love, and,
of course, being spiritually in-tune with our Creator, we also need to get
real. Not from a weaponizing standpoint, but from a truth
perspective. And truth can be ugly.
I’ve learned some unsettling truth
in recent years, be it my mother’s backstory or simple health facts. I’ve
needed to address its impact on me. There’s been much focus on my
mother’s status as being a “vulnerable adult.” I, also, need to concede I am a
flesh-and-blood mortal.
The Baked Cake: You Must
Take Care of Yourself:
“For no man
ever yet hated his own flesh; but nourisheth and cherisheth it, even as the
Lord the church.”
Ephesians 5:29
Mortality?
Vulnerability? Rubber, may I introduce you to some screaming road?
Yes, we may passively
assent to taking care of ourselves. But, in practice?
Well, that’s trickier,
isn’t it?
Indeed, for years, I convinced
myself that Mom was the fragile one. I was healthy enough to withstand
the rigors of this caregiving thing.
And then, in July of 2017, I received my Breast cancer diagnosis.
Since then, life has profoundly changed. And part of that
includes my mother.
Diagnosis, treatment and my foray into “survivorship” have
all demanded I change how I relate to her and how involved I am with
her.
If I refuse to make those changes, it could severely impact
my health; I could die.
Many of us caregivers, especially us female
caregivers, are shamed mercilessly if we do not expend all of ourselves for
someone else, like our parents. Refusing to do just that, in fact, can get us
labeled as the “bad daughter.” No one wants that moniker.
But, again, reality. Cancer. That is a
formidable opponent. Divine healing is wonderful, but it does not negate the
natural mandate of both Ephesians 5:29 and that of Mark 12:31:
“…Thou shalt
love thy neighbor as thyself...”
We are instructed to take care of our temples,
our vessels. We are, yes, to “love one another,” but love them as we
love ourselves.
Let’s be brutally honest here. In the
caregiving context, if we demonstrated the kind of love to “our neighbor” that
we show ourselves, social services and the police would be called.
That would be considered abuse. We wouldn’t dream
of treating someone so shabbily. So why is it excusable to mistreat ourselves
that way?
Demanding that nothing slow down or change for
us, in the face of a life-threatening diagnosis, all our own?
Come on. That is insanity. It’s not
scripturally sound.
We need to take our lives into consideration:
our health conditions, our marriages, our children, our well-being.
Prioritizing those needs means changing our caregiving choices. And that
is not evil. It is being a good steward of what is entrusted to us instead.
So, yes, my involvement with my mother
has radically changed. My body and my own needs have changed.
I must respond accordingly.
The Baked Cake: You Can
Never Explain It Enough:
“Simply
let your 'Yes' be 'Yes,' and your 'No,' 'No'...”
Matthew
5:37
Hey, guess what? Mom doesn’t like these changes. And she certainly doesn’t want to hear me tell her “no.”
The next “Baked Cake” Lesson? Boundaries!
Here’s a dirty little secret: most of us, within our family dynamics,
have unhealthy, sometimes even, nonexistent boundaries. This creates toxicity, sooner or
later.
I tried, for years, to work on my issues, through prayer, community,
therapy. Likewise, I took a stab at healthier boundaries. Those efforts did not
go over well with my increasingly needy, vulnerable adult of a mother. My
“no’s” were viewed as ungrateful. How dare I?
And then came my diagnosis. I could no longer just “will” myself into
performance. Physically, everything changed.
Mom hates that reality. In the early days of my diagnosis, I earnestly
tried to reason with her about these “no’s.” She wasn’t getting it. Her inability,
denial, fears and unwillingness all contributed to her negative response. After
exhausting myself repeatedly, I learned and applied a Twelve-Step recovery
principle, “JADE.” And it compliments Mom’s “Baked Cake.”
“JADE:” Justify, Argue, Defend, Explain. Simply stated: don’t subject
yourself to situations in which you feel manipulated to do those things. Mom’s cognitive ability has
deteriorated over the years. She has more difficulty understanding things,
especially if they are upsetting. And going around the same mountain was
physically and emotionally taxing to me.
I learned, via my diagnosis and simultaneous caregiving, that I can
never provide a “good enough” explanation for telling my mother “no,”
therefore, displeasing her. She is not getting it, for whatever reason. And so,
to take better care of myself (and her), I need to accept “what is,” rather than “what if.”
The Baked Cake: The
Wisdom Ingredient:
“If any of you lacks wisdom, you
should ask God, who gives generously to all without finding fault, and it will
be given to you.”
James 1:5
See yourself here, in any of this?
You may not be battling a life-threatening disease, but you’re
challenged, all the same, with your own loved one and circumstances, aren’t
you?
Sooner or later, we all encounter the “Baked Cake” of life, that,
seemingly, immovable person we love and care for. How will we respond?
Radical acceptance can be key. There are things we’ll never understand.
There are explanations we’ll never have access to. Life and people will confront
and break our hearts.
As finite human beings, we have limitations. We need help. But we also have a loving, guiding
Almighty Father doing just that. Do we ask for that help?
He’s leading me; He’s leading you.
As we deal with this “Baked Cake” experience, therefore, may you and I
learn His
healing ingredients to both survive and thrive.
Copyright © 2020 by
Sheryle Cruse
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